Thanks to a group on Facebook, the members directed me to a lovely lady in Great Ormond Street, she told me exactly what we needed to do and where we needed to go to get Sophia on the right track with medication to help her hemangioma. Day by day Sophia’s birthmark grew, going from pink to blood red, until it had swollen her eye shut. She experienced numerous bleeds, was all so scary, especially when waking up to find your baby covered in blood! Before they could start any sort of treatment, Sophia had to undergo an mri, echocardiogram and ecg all at less than a month old!